Programme MaNaMa Day 1
10/10/23 - UZ Brussels
At VUB campus Jette, Laerbeeklaan 103, 1090 Jette
Room: Forum and for the breaks the Atrium
It should be noted that this year we will only provide drinks (coffee/tea, water (still and sparkling) during the breaks. Sandwiches will no longer be provided.
9.00 – 9.15 Welcome
Saskia Bulk (ULiège) and Marije Meuwisse (UZA)
9.15 – 11.00 Presenting centers and trainees
- Trainees present themselves and their center (staff including assistants, expertise, training, required courses, etc)
- Assistants present their non-genetics rotation (what did these specialties bring to the formation as clinical geneticist and/or PhD topic)
11.00 – 11.30 Coffee
11.30 – 12.00 Yearly speech by presidents of the commission (french and dutch speaking)
Koen Devriendt (KUL) and Vincent Bours (ULiège)
Training and recognition, role of different organs, genetic landscape in Belgium
12.00 – 12.15 European Certificate in Medical Genetics and Genomics (ECMGG)
Laura Polsler and Sophie Uyttebroekck (VUB) (Slides)
Tops and tips on how to prepare for the European exam
12.15 – 13.15 Lunch
13.15 – 13.45 The ELSI committee : ethical and legal aspects of clinical genetics
Jean-Stéphane Gatot (Uliège) (Slides)
13.45 – 13.15 Meat the actors in clinical genetics:
The psychologist, the genetic counselor and the laboratory specialist
Julie Nekkebroeck, Ileen Slegers, and Alexander Gheldof (VUB) (Slides)
14.15 – 14.45 Coffee
14.45– 16.00 Yearly discussion of difficult cases (medically or ethically)
This year, we focus on our nightmarish cases with terrible intrafamilial communication (index case does not want to inform their family, index cas was not informed by their family, affected children were born because nobody bothered to tell cousin Lucy that a diagnosis was made…, etc.).
- Each center presents one case, with a focus on the communication aspect. After presentation of each case, we will discuss alternative ‘solutions’.
16.00 – 17.00 How to inform relatives - an international comparison and suggestions how to apply in Belgium?
Lynne Rumping (UZA) (Slides)
17.00 Wishing everybody a safe trip home
Saskia Bulk (ULiège) and Marije Meuwisse (UZA